IneffaBelle’s Blog

Living with chronic illness in the year 2019…

Birthday Reflections

It’s really hard to believe that I am 36 years old today…  Looking back it feels good to reflect on all the things I’ve manage to accomplish for myself despite my health issues.  I’ve come so far since my 20s which were quite the train wreck… spending most of my time in and out of the hospital with my various autoimmune diseases.  Just 11 years ago, on my 25th birthday I sat in my doctor’s office facing the great unknowable future which was the rest of my life.  Not knowing what kind of quality of life I had ahead of me.  A question no one could answer.

But with the right combination of treatments, I was able to start up my own business again doing graphic design and build it into a success.  And I’ve even recently (finally) published my first novel.  And I’ve been able to take the lessons learned from my own challenges and successes and use them to help other young adults struggling to make a life for themselves despite having a chronic illness.

It’s easy to look back and reflect on all of those things.  It’s harder looking forward to the future I’ve looked so hard to make for myself and realize it might not be there.  Not for me.  Not for my children.  Not for anyone.

But as I did on my 25th birthday, I must gather my inner strength and believe that there is a future worth looking forward to.  I did it then, and I can do it again, but this time not just for myself but for everyone.

On a lighter note, I got a really awesome birthday card today:

Thank you everyone for the card!  There’s enough cake to go around so everyone take a slice…

… and take a candle and make a wish and a hope for a better future.

(view this post on the Superstruct website)

Thursday, October 23, 2019 Posted by | Uncategorized | , , , , , | Leave a comment

Camped Out For Meds

Just got back from camping out for medications…

Thursday, October 16, 2019 Posted by | Uncategorized | , , , , | Leave a comment

No Meds Since ReDS


Since the ReDS outbreak, I can’t get the medications I need for my chronic illness.

Sunday, October 12, 2019 Posted by | Uncategorized | , , , , , , , , , | Leave a comment